I realized today it has been 6 months since our last post. I remember in the days after dad died not being able to imagine giving up this blog because we would be that much more removed from when he was living and breathing and here with us.
I am missing him a lot today. I have learned about grief that life truly does go on - and it should. But I miss my dad every day and some days are worse than others. In April we will reach the two year anniversary of his going home to Heaven.
If you are grieving someone, be patient with yourself. It truly does take time.
I would encourage anyone dealing with ALS to reach out - to family, to friends, to your doctor, to your ALSA chapter. If laundry help is what you need, ask! If you need someone to run errands or just sit with you or your loved one, ask! There is no shame in asking, that's for sure. Often people want to help you very much, they just don't know what to do.
One more piece of advice. If your loved one is losing his or her ability to speak or feels that might be on the horizon, make sure you record them. Ask questions - and record their answers. You will be very glad that you did.
Also, get involved in your local Walk to Defeat ALS or other event - The Packard Center, Brigance Brigade, Team Gleason and many others have events to fight this monster named ALS.
