Hello Sweetheart!
Today it is 2 years since you left for Heaven. Time goes so fast, and things are changing. We now have 2 beautiful new granddaughters-in-law. They are wonderful, and I love them both. In March Jordan and Noelle had a really beautiful baby girl, Kylie Elizabeth. Can you believe that your blushing bride is now a Great Grandmother??
We all still talk about you a lot and miss you so much. I no longer expect you to walk in the door any minute, but I sure still wish you would. Ben continues to talk about you like he sees you in the room. Maybe he does see you. Maybe that is a gift from God. (He tells us that you still have a moustache and wear a hat.) Ben doesn't remember you like the others do, so maybe God allows him to know you in another way.
It is almost Easter, and I have learned what a gift Easter is. Because of that gift I know that you are in Heaven and waiting for us. More than that I can’t ask for. I find it hard to be in Church during this season because I miss you, but also because I am so grateful for the knowledge that you are in Heaven, so I just sit there and let the tears roll, and I am filled with gratitude that you are in your home.
I love you Bill, always have, always will.
Joan
Our dad was diagnosed with Amyotrophic Lateral Sclerosis (ALS) in July 2011. This is our story.
April 11, 2014
March 2, 2014
6 Months
I realized today it has been 6 months since our last post. I remember in the days after dad died not being able to imagine giving up this blog because we would be that much more removed from when he was living and breathing and here with us.
I am missing him a lot today. I have learned about grief that life truly does go on - and it should. But I miss my dad every day and some days are worse than others. In April we will reach the two year anniversary of his going home to Heaven.
If you are grieving someone, be patient with yourself. It truly does take time.
I would encourage anyone dealing with ALS to reach out - to family, to friends, to your doctor, to your ALSA chapter. If laundry help is what you need, ask! If you need someone to run errands or just sit with you or your loved one, ask! There is no shame in asking, that's for sure. Often people want to help you very much, they just don't know what to do.
One more piece of advice. If your loved one is losing his or her ability to speak or feels that might be on the horizon, make sure you record them. Ask questions - and record their answers. You will be very glad that you did.
Also, get involved in your local Walk to Defeat ALS or other event - The Packard Center, Brigance Brigade, Team Gleason and many others have events to fight this monster named ALS.
I am missing him a lot today. I have learned about grief that life truly does go on - and it should. But I miss my dad every day and some days are worse than others. In April we will reach the two year anniversary of his going home to Heaven.
If you are grieving someone, be patient with yourself. It truly does take time.
I would encourage anyone dealing with ALS to reach out - to family, to friends, to your doctor, to your ALSA chapter. If laundry help is what you need, ask! If you need someone to run errands or just sit with you or your loved one, ask! There is no shame in asking, that's for sure. Often people want to help you very much, they just don't know what to do.
One more piece of advice. If your loved one is losing his or her ability to speak or feels that might be on the horizon, make sure you record them. Ask questions - and record their answers. You will be very glad that you did.
Also, get involved in your local Walk to Defeat ALS or other event - The Packard Center, Brigance Brigade, Team Gleason and many others have events to fight this monster named ALS.
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