December 13, 2012

Resources

If you found our blog and are a PALS, caregiver, family member or friend, we are glad you are here!  We are far from experts.  We just know how this walk feels and how it went for our dad and husband.  We would like to share some excellent resources for information and ways to get involved.  I am sure there are many, many more.  Here are just a few:

Your Local ALSA Chapter . . . Here in SD, our closest chapter office is in the Twin Cities and they head up the MN, ND and SD Chapter. . . http://webmn.alsa.org.  They not only give money to research, but also have great access to loan pools for equipment as well as staff that provide emotional support.

Your local Muscular Dystrophy Association.  They have a section dedicated to fighting ALS!

Team Gleason www.teamgleason.org.

Brigance Brigade www.brigancebrigade.org.

The Packard Center at Johns Hopkins www.alscenter.org.

The Caroline Rober Blog . . . My family found their blog very helpful. www.carolinerober.com.


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