Fatigue is probably the biggest problem right now. I don't think any of us expected Dad to be SO tired all the time. Breathing is pretty tough, but voice is stronger today. It's such a day-to-day disease. It can take months to lose a function, or they can wake up one day and a function is just gone. As far as swallowing, it's the things you'd expect to be hard such as beef, but then there are the stranger things such as oranges, waffles and pancakes that he can't swallow anymore. Dad has a fat guy's appetite and a thin guy's metabolism. I hate that ALS takes away the pleasure of food. He really likes company - I think the days get pretty long. He is also a big fan of the more crispy-type sugar cookies and so far, he can eat those ;)
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