March 5, 2012

     I snapped this photos on Saturday with my phone.  Erin and Dad were looking through some old pictures.  It was good.  We spent several hours with Mom and Dad on Saturday, Erin and her boys and me and my kids (minus Jared who was on a track trip)  It was nice, but Dad got pretty tired.
      Bill is planning to come home again March 16.  That's something to look forward to, because Dad's having trouble talking on the phone and hasn't been able to talk to Bill the last few days.  His voice is weak and he gets pretty winded with talking.
      He continues to barely eat, and isn't drinking much.  The oxygen is constant now, and he uses the bipap occasionally.  He still hates the bipap, and feeling like he is tied to a machine.  I wish that he could eat and drink more, and that he would use more of the morphine to ease his breathing.  But we who know and love him best :) know that he has a mind of his own. These are tough choices, but they are his choices to make, and we support him.  And we've learned the hard way that there isn't anything about this awful disease that isn't tough.   ALS sucks. 

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