February 12, 2012

ALS Assoc Kudos

Kudos to the ALS Association. For all of you who participated and contributed to the ALS walk this October, thanks again, and know that your time and money really does go to help real people. It's a week of equipment delivery ahead, free and hassle free. 

Its been a little bit of a tough week.  The breathing situation is definitely getting harder.  He's more winded, more easily with activity and even at rest.  He is trying to use the BiPap more.  Lying flat makes the breathing harder, and a hospital bed is on the way.  We are hoping that plain oxygen will be delivered tomorrow as well.  There is a special table coming that will work with Dad's recliner so that he doesn't have to work so hard to get things that he needs, like his glasses, the phone, or a book.  Every little bit of conserving energy counts.  Oh yeah, and a gel cushion for his skinny butt.

Mom has a cold and isn't feeling good today either.

Nutrition...well Dad's just not hungry and just plain isn't feeling good.  The new motto is, the heck with nutrition, let's just bribe him with whatever calories he can force down.  Chocolate eclairs were Mom's idea today.  Chinese food, juice drinks, cottage cheese, Boost, anything that he is willing to try.  Why is it that Dad gets sick, and I stress eat and gain weight? 

Boredom is a problem.  Until just so recently he was so active and hard working. There is only so much TV that he can watch.  For some reason, he just doesn't get into shows like Jersey Shore.  Visits are definitely welcome.  And he is trying reading western books on the kindle.   

Dad was able to get to Nathan's basketball game yesterday.  That was a plus.  :)

1 comment:

  1. Better day today..He is even picking on me. I love it and Thank You Lord for this better day.

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