Tough day today. His breathing is worse, and he spent most of the daytime and evening hours on the oxygen and Bipap. This proves that he really does feel pretty short of breath, because he hasn't been a big fan of the bipap. The mask leaks and the pressure bothers him. The hospital bed isn't comfortable for him like we had hoped. Even though the head of the bed can be elevated, he seems to be able to breathe easier when he is in the recliner, with his knees up. They weren't able to get out to the seating clinic appointment due to his breathing today. The plan has been to try to get him a power wheelchair with better support for comfort, but I don't know if that will happen. Our job as his family is to support Dad and his decisions. He has said no to a trach and mechanical ventilation. He hasn't wanted tube feedings. He turned down hospitalization over the weekend. We are all going to his appointment tomorrow with a palliative care physician.
Serenity prayer. And hugs and thanks to everyone for your prayers, visits, phone calls and support.
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